You’re probably wondering who I am. Here’s a quick story of my life and disability.

It all started when I was born, to a loving family, with amazing parents and four siblings.

And just like other kids, I learned to crawl and walk, but at the age of 3 my body became weak, until I couldn’t walk nor stand anymore.

I remember my childhood being normal, except for the fact that I always needed a wheelchair to sit on.

Two of my siblings had the same condition, but they have passed away at a very young age.

Doctors said our condition is called Spinal Muscular Atrophy (SMA Type 3), or sometimes called Kugelberg Welander Syndrome.

It is a rare inherited neuromuscular disorder characterized by weakness in the muscles of the arms and legs.

50% of the people with this condition develop scoliosis. And obviously I am part of that 50%.

Due to my sibling’s unfortunate early death, I was left to believe that I would only have a short life expectancy just like them.

Yet, I finished school at the age of 18 and now I’ve had an online career for almost a decade. (Graphic Designer)

I believe that there are some things in our lives that are out of control, that we can’t change, that we have to live with.

Its either we give up or tough up.

For me, I made a choice not to make my disability a hindrance to continue with my life.

Now, I am already 27 years old, and I love to think that I am winning!

“If you can’t change the circumstances, change your perspective.”

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Thank you! 


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